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Re: Nightline and Adult Auties: msg#00056

culture.autism

Subject: Re: Nightline and Adult Auties


> >
> > Tom - I think we have to disembark from the "institution" and even
> > "group
> > home" mindset. It really is a change in thinking.
>
> I hear you but still think it's naive and utopian. Even if you got
> something like that going, it wouldn't take long for it to
metamorphize
> into an institution to keep going. It's the nature of things, but
the
> attempt does produce a good foundation. So I'm in. Alot of it is
> semantics anyway.
>
> Tom
>
> > Have to run! More later!
> >
> > ~*~ tink
> >
*****the communication aspects are important because what the
AUTISTICS want and choose , feel and think and ultimately decide for
themselves are important. do they want to be in institutions or
group homes or do they want to be members of society and their
communities? that is the question. they are more than able to think
and decide for themselves what they need and want "for themselves".
its getting them to 'express' it and getting peoples 'hearing'
themselves that gets in the way. we will establish communications so
they can voice their desires and we will defend their decisions.
ther'es enough peoples out there deciding whats best for them.
there's enough peoples ignoring them as well. i think its time
already someone asked them what they want and need and DEFEND their
choices. it is a change of mindset. more like they will need
assistance but not be dependant. i will work on things now to ensure
that my daughter will have the options available for herself when we
get to that point. so that ultimately whether she will be in a group
home or institution or be a mamber of society and her community we be
her deciosion. not yours, not mine nor anyone elses.

think for a moment if you sudenly had a stroke. and became very
limited. you suddenly cant talk. barely move. and people had to
decide what to do with you. now, would you want peoples to establish
some form of communication so you can be participatory in the
decision of whether you be put in a nursing home, or institution or
live independantly with aide or assistance maybe with your family
right next door or acroos the street... or just leave someone else to
make that decision for you without any input from you. what would you
decide? what do you think my child would decide?

that's important. because with our kids what you want and what you
think for them is never as important as to listen to what they want
and think should be done for themselves. you will not be advocating
for them. but assisting them to advocate for themselves... ABCD







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