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Re: my child types...: msg#00054culture.autism
--- In autismlist@xxxxxxxxxxxxxxx, "Tink" <tink.lecuyer@xxxx> wrote: > > We've had a bit of both type responses from the "purely" spiritual & > "purely" autism groups. But, overall - any slams were not for Ben's > communications and/or how "we" might communicate together. Definitely the > spirit-based groups wanted to "hear the message" - and had little concern of > the "how the message" was produced. FC remains suspect - so, any > communication produced this way will remain suspect - in *some* minds. WD's > line of "offender, offended, offense" remind me strongly of the Chironic > aspects of ourselves: The Healers. The Wounded healer. Wounded, healer, > and wounder. I loved that line: "real-eyes" for "realize." He is > bothered by injustices & expresses them in intensity with strong emotion & > thru the music. > > Crabtail - -- lol it's ok. Ben calls me "American woman" from Guess Who > when he's super mad, and he is not beyond the intensity of those feelings. > "American woman, get away from me-hee. Mama let me be-hee." I'm happy to > write it's only happened twice in all the time I've known him. ::::whew:::: > lol When I'm just fine in the Ben world it's a line from "Howard's End": > "i'm asking you to be my wife." lol lol lol They're pretty hilarious > sometimes. > > Do you know why WD calls you "mum" ? That struck me odd & I don't know why. > [also forgot to ask if you 2 made it up to Syracuse FC Institute for a > visit?] hello we never made it up theres as money was tight and we had emergency issues going on here. im not sure about the mum part she leaves out a lot of the vowels. and we do clean up misspellings too. which enrages her when we dont get it right. so she adds more vowels on nows as she gets impatient with us if we dont get it right off. so mom or mum could easily have been just mm. also she tends to pick same sounding consonants depending on where she is closest to on the letterboard. c.k.qu. she has phonological spelling too. like she may state 'fc' now afters we coreccted her. but she spelled it once 'fsees'. whats strange is that she was reported to have auditory processing prblems. so go figure. we do have my nephews who insists on making up his own variations of words and phrases and if we dont have reason enough why he shouldn't. (we dont) we just let him. so he call them 'f sees' and 'f seeing'because n. tried to correct him and wrote fc. in which he became distressed until she agreed it was f see communications. N. once quipped."hey is it facilitated seeing? and he clapped his hands. so thats on his folder. f see communications. we rotate communications so i wasnt actually the one who fsee'd with her on this communication. that was with N. our student teacher from Nova University. by the way kids are having a blast with bens communications. my one neice doesnt talk but sings and she sings out some phrases. it gets all disconcerted though. ABCD > > Ben had 2 kind of odd notes for here: > 1. a quote: > > "I named my dog Willie, so sometimes when the phone rings and somebody asks, > "Is Willie there?" I can say, "Which one do you really want to talk to?" ~ > willie nelson. [pointed out in a magazine] > > 2. a song: > > Space Cowboy > > By: Steve Miller and Ben Sidran > > I told you 'bout living in the U.S. of A. > Don't you know that I'm a gangster of love > Let me tell you people that I found a new way > And I'm tired of all this talk about love > And the same old story with a new set of words > About the good and the bad and the poor > And the times keep on changin' > So I'm keepin' on top > Of every fat cat who walks through my door > > I'm a space cowboy > Bet you weren't ready for that > I'm a space cowboy > I'm sure you know where it's at > Yeah, yeah, yeah, yeah > > I was born on this rock > And I've been travelin' through space > Since the moment I first realized > What all you fast talkin' cats would do if you could > You know, I'm ready for the final surprise > There ain't no way around it > Ain't nothing to say > That's gonna satisfy my soul deep inside > All the prayers and surveyors > Keep the whole place uptight > While it keeps on gettin' darker outside > > I'm a space cowboy > Bet you weren't ready for that > I'm a space cowboy > I'm sure you know where it's at > Yeah, yeah, yeah, yeah > > I see the show downs, slow downs, lost and found, turn arounds > The boys in the military shirts > I keep my eyes on the prize, on the long fallen skies > And I don't let my friends get hurt > All you back room schemers, small trip dreamers > Better find something new to say > Cause you're the same old story > It's the same old crime > And you got some heavy dues to pay > > I'm a space cowboy > Bet you weren't ready for that > I'm a space cowboy > I'm sure you know where it's at > Yeah, yeah, yeah, yeah > > Best Blessings, > ~*~ Ben & tink > > -----Original Message----- > From: autismlist@xxxxxxxxxxxxxxx [mailto:autismlist@xxxxxxxxxxxxxxx] On > Behalf Of autisticdreaming > Sent: Monday, October 10, 2005 9:42 AM > To: autismlist@xxxxxxxxxxxxxxx > Subject: [Autismlist] my child types... > > > this was sent to another group. surprisingly the most open groups > ive been to that i have found the most support were groups that had > naught to do with autism. im not sure why but with my childs posts i > feel safer in some non autistic groups than in autistic groups. for > some reason i am more likely to just get slammed in an autistic > setting than in another forum. i will get a'this isnt autism.' from > someone or the other. but then maybe its not THEIR 'autism'... but my > child IS severely autistic as is my nephew and they have their voice > as well as everyone else. this post she discribes the difference > between herself and myself. although we are both autistic we do see > things a bit differently..i can never really speak for her because my > view is a bit more limited than herself..: > > > > > > i am what wood b a crstall my mom an indgo. she worrez. she angrz > >eazili when peoplz lie. so i name her the crabtail. crankee > > crabtail...she seez that they liez and it angerz herself. i see > >that they lie and i have knowing of why they do so. i know theyer > >fearz theyer ancieatiez all they keep hidden and whyz. my mom seez > >sum. i see a bit morez. my mum can feel and take offens....as i > > am beyon time and spas i am seein al that iz.. i am the offender, > >the offended, the offense > > i am all of these and more. > > my mum may focus sum on detailz. > > but all moves within and thru owt myself. my mum sees something to > >set rite somethin to fite forz. i se no point of this as i am that > >whitch is fouht for and aganst... all of theze i am. expereeans all > > theze i do. for i am all of thez all at once and agaen. my mum may > >go on crusayd. find a wrthi micion. but i simply. am. i am all that > >is. all that i am. i am. i am what they call crystal. but beyond > >this i simply am. > > > > > this from a friend of herself: and it brings hapiness that peoples > see herself just as she truly is.: > > "...I hope Your sister can allow so that Your nephew doesn't have to > give up his exploring. Looking forward to the day We real-eyes that > autism is a more natural state than materialism, if not more normal. > Perhaps We will see the day when the "normal" will be to journey > within and without. Lead on WD, We will ride rainbows and northern > lights as well as storms..." > > > > > > > > > > > Yahoo! Groups Links > ------------------------ Yahoo! Groups Sponsor --------------------~--> AIDS in India: A "lurking bomb." Click and help stop AIDS now. http://us.click.yahoo.com/DGdbQD/lzNLAA/xGEGAA/wzSolB/TM --------------------------------------------------------------------~-> |
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