RE: Re: Nightline and Adult Auties

yes.  seconded, abcd!  the "autism community" here does not support this
type of vision.  We are literally in the heart [or belly] of the ABA beast.
Parents want it [strict aba - it's mercury madness & curebie central.]  so
be it for them.  No one protests & we are "odd man out."  It's unfortunate.
However, we found an interesting "side door" ... the Down Syndrome families!
Will write more about this later.

Tom - I think we have to disembark from the "institution" and even "group
home" mindset.  It really is a change in thinking.

Have to run!  More later!

~*~ tink

-----Original Message-----
From: autismlist@xxxxxxxxxxxxxxx [mailto:autismlist@xxxxxxxxxxxxxxx]On
Behalf Of Tom Smith
Sent: Monday, October 10, 2005 5:29 PM
To: autismlist@xxxxxxxxxxxxxxx
Subject: Re: [Autismlist] Re: Nightline and Adult Auties


Bravo "autisticdreaming"!!  I agree with the spirit and content of
everything you said here.  There actually is a large and successful
institution that was built on the same kind of dream.  The Devereux
Foundation which was founded by Helena Devereux who had the same dream
in the early 20th century.  It became the largest and most respected
institution for the developmentally disabled in the USA.

You need any help out there in Florida?  I've hit a dead end here.

Tom

--- autisticdreaming <autisticdreaming@xxxxxxxxx> wrote:

> hello ive not seen this eithers. this is something we need to all
> think of as well as our children get olders. i worry some. but
> decided worrying and complaining wont get me nowheres so i made
> consciouse decision to the something. ive gotten from my child
> a 'build it. they will come.' message so's i learned naught to listen
>
> to peoples say they tried this and they tries that. i know i cant
> change nones but myself. so i must finetune myself and create or
> rather discover the solution that is theres all along. we can all
> worry about the futures or we can complain abouts what is not being
> done or we can create the solution within ourselves. like so we have
> with fc. no real training or guidance, did we need any of these to
> learn communication? no. if i want something done it will be done. it
>
> gets difficult when we trys and get challlenges and obstacles come to
>
> us. i get so shocked peoples not see what we want to be doing and not
>
> be a part of it as well. and peoples trys to shut us down. it shocks
> me so. but i have and will do something. like i will do something now
>
> for the future of our children cant do all on my own. but i know i
> will have a community built for our children a community we are all
> part of. i have no doubt in my mind about that. so my childs future i
>
> know is secure because i will make it so. i can not depend on others
> to do what or to provide what i think they shoiuld. that takes too
> long. a wise man said 'what you resist persists' which i agree. i not
>
> need to fight against or for anything. just create. create the vision
>
> in my mind alrerady given to me. i wont quite. and peoples see what
> we trys to do and this appeals to themsleves and they will pattern
> something perhaps finetune an idea of what works over what does not.
> time it is a clumsy thing. and i cant know what to say about the
> adults now and far. we will do what we can where we are at. and our
> groups get bigger. everyone has a part to play. a role to take on if
> they willing. i will be satisfied with no less tahn knowing i am to
> be aprt of transforming the world. my child and my nephews and neices
>
> and our other children that are all my own really as we watch then=m
> grows togethers and the families struggle together. why be alone if
> togethers we are stronger.  some just complain. some just talk. but
> sometimes wait awaile .. some see us doing and start doing as well.
> people start to want to be part of something that they can believe in
>
> even if we make stupid mistakes. a handfls of people still accomplish
>
> something that was not dependant on something else to get done. if we
>
> wait for fc to be done in schools and such it will naught get done.
> do it regardless. my child is going to a special needs hebrew school
> wheres options will be explored where ther are not elsewhere. we have
>
> a suport group second thursday of the month at a holistic healing
> center where children and parents and others explore and support and
> gets together. five dollar love donation. wanna try fc with my child?
>
> here you go. i'll show you how. once peoples establish communication
> desire for conversation increases. people seek out those they have
> new method of interaction. families support each others. say a and b
> stays with c and d's children whilst a and b go food shopping. my
> home your home. make the time. get to know other autistics not your
> own. so they see you as part of their routine as well. we build the
> communities. we are the ones that will make a difference. we need not
>
> worry of these ourselves because these are the questions, these are
> the worries we are all facing. why go through it alones? when
> together we can get through it alls together? build your communities
> now. i am building my community now so that my child will not be
> alone nor will anyone in my communities child be alone because they
> are my child and my child is their child. it is not an impossibility.
>
> something to get used to is all. if no one provides create the means
> to provide. we can create the soulotion. we have two single moms
> whose husband deserted themselves buy a home together. and they raise
>
> their children together. my friend s. is up the street. b is five
> miles down other end. a is two minutes other direction. sometimes we
> need privacy. but we are linked togethers in gruops and gettogehters.
>
> our children have a solid routine that extends beynd just immediate
> families. i am building now so we have a supportive community already
>
> set. it will be set. sometimes obstacles frighten myself becuase i
> dont ever see them in my visions so they startle me. but once past
> everything will go on as usual. what will be done with adult
> autistics. one thing for sure our government knows not. except build
> more institutions. i see myself in my condo and my adult child
> independantly in hers with an aide next door or not. why not an
> entire condo building with autistic adults and their eldery families
> or not.  aides checkning in on both.
>
> i know i want to build a future. i will not just let things happen. i
>
> will be a deciding factor on how i want things to end up. you can as
> well.  of course things going get in the way but our future is
> something i am making a mindful decision of. i will be part of
> something many things inertwined together. each of us working on a
> differnet part. i will be part of something that will transform a
> supposed outcome. and for the challenges that come with peoples
> saying cant, and not able to, not enough monney, i remember that
> noone ever telling me i couldnt do anything ever really stuck. so i
> disregard naysayers. and i recommend the same for all. we can all do
> this be it in florida or alaska or everywheres inbetween and
> outwards..it starts with us all.. find someone going through the
> same. connect and network. babysit for one another. cook extra dinner
>
> for themselves one night whilst they cook dinner for you on another.
> today i stopped by and did my friends laundry and watched my friends
> kids whilst she worked today. my sister had first 4 and a half hours
> and i came by for the other four and a half hours. my friend came
> home to a clean house and i went home with a case diapers and
> babywipes. her kids are my kids. my kids are hers. build the village
> and people will come. and your worries are everyones worries that we
> take care of together.. it is possible. and people are doing it. we
> dont have to become statistics. we dont. if the future looks scary
> and grim we all have the pwoer to change it. believe it. abcd...
>
>
>
>
> --- In autismlist@xxxxxxxxxxxxxxx, "Tink" <tink.lecuyer@xxxx> wrote:
> >
> > I was sorry to have missed this show.  If I can get the
> transcripts, will
> > publish here.
> >
> > 'Nightline' Looks at Adult Autism
> > What Happens to Autistic Children When They Grow Up?
> >
> > Oct. 7, 2005 ? More than one million Americans are autistic. It's
> the
> > fastest growing developmental disability, estimated at one in 166
> births a
> > year. Much has been reported on autistic youth and as we come to
> terms with
> > this trend among children, many wonder: What happens when all these
>
> children
> > grow up?
> >
> > As ABC News correspondent John Donvan reports, a significant
> challenge
> > facing these families is establishing enduring support for their
> children to
> > last through adulthood and life. Jim and Jen Hoppe ? whose 21-year-
> old
> > daughter Jamie is profoundly autistic ? helped develop a school
> where Jamie
> > made enormous progress for 16 years.
> >
> > For the parents of Paul DiSavino, who is 36 and autistic, the
> concern now is
> > what will happen to their son when they are gone. Their current
> solution is
> > a group home, but the alternative would be unbearable. Says Paul's
> mother,
> > Marlene, "He will not survive it ? it would be regressing back to
> the
> > institutions, back to not caring, just doing, just warehousing them
>
> ? not
> > recognizing what's important, and just abandoning them."
> >
> > Watch "Nightline" tonight at 11:35 p.m. ET to see the full report.
> >
>
>
>
>
>




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