Re: Nightline and Adult Auties

hello ive not seen this eithers. this is something we need to all 
think of as well as our children get olders. i worry some. but 
decided worrying and complaining wont get me nowheres so i made 
consciouse decision to the something. ive gotten from my child 
a 'build it. they will come.' message so's i learned naught to listen 
to peoples say they tried this and they tries that. i know i cant 
change nones but myself. so i must finetune myself and create or 
rather discover the solution that is theres all along. we can all 
worry about the futures or we can complain abouts what is not being 
done or we can create the solution within ourselves. like so we have 
with fc. no real training or guidance, did we need any of these to 
learn communication? no. if i want something done it will be done. it 
gets difficult when we trys and get challlenges and obstacles come to 
us. i get so shocked peoples not see what we want to be doing and not 
be a part of it as well. and peoples trys to shut us down. it shocks 
me so. but i have and will do something. like i will do something now 
for the future of our children cant do all on my own. but i know i 
will have a community built for our children a community we are all 
part of. i have no doubt in my mind about that. so my childs future i 
know is secure because i will make it so. i can not depend on others 
to do what or to provide what i think they shoiuld. that takes too 
long. a wise man said 'what you resist persists' which i agree. i not 
need to fight against or for anything. just create. create the vision 
in my mind alrerady given to me. i wont quite. and peoples see what 
we trys to do and this appeals to themsleves and they will pattern 
something perhaps finetune an idea of what works over what does not. 
time it is a clumsy thing. and i cant know what to say about the 
adults now and far. we will do what we can where we are at. and our 
groups get bigger. everyone has a part to play. a role to take on if 
they willing. i will be satisfied with no less tahn knowing i am to 
be aprt of transforming the world. my child and my nephews and neices 
and our other children that are all my own really as we watch then=m 
grows togethers and the families struggle together. why be alone if 
togethers we are stronger.  some just complain. some just talk. but 
sometimes wait awaile .. some see us doing and start doing as well. 
people start to want to be part of something that they can believe in 
even if we make stupid mistakes. a handfls of people still accomplish 
something that was not dependant on something else to get done. if we 
wait for fc to be done in schools and such it will naught get done. 
do it regardless. my child is going to a special needs hebrew school 
wheres options will be explored where ther are not elsewhere. we have 
a suport group second thursday of the month at a holistic healing 
center where children and parents and others explore and support and 
gets together. five dollar love donation. wanna try fc with my child? 
here you go. i'll show you how. once peoples establish communication 
desire for conversation increases. people seek out those they have 
new method of interaction. families support each others. say a and b 
stays with c and d's children whilst a and b go food shopping. my 
home your home. make the time. get to know other autistics not your 
own. so they see you as part of their routine as well. we build the 
communities. we are the ones that will make a difference. we need not 
worry of these ourselves because these are the questions, these are 
the worries we are all facing. why go through it alones? when 
together we can get through it alls together? build your communities 
now. i am building my community now so that my child will not be 
alone nor will anyone in my communities child be alone because they 
are my child and my child is their child. it is not an impossibility. 
something to get used to is all. if no one provides create the means 
to provide. we can create the soulotion. we have two single moms 
whose husband deserted themselves buy a home together. and they raise 
their children together. my friend s. is up the street. b is five 
miles down other end. a is two minutes other direction. sometimes we 
need privacy. but we are linked togethers in gruops and gettogehters. 
our children have a solid routine that extends beynd just immediate 
families. i am building now so we have a supportive community already 
set. it will be set. sometimes obstacles frighten myself becuase i 
dont ever see them in my visions so they startle me. but once past 
everything will go on as usual. what will be done with adult 
autistics. one thing for sure our government knows not. except build 
more institutions. i see myself in my condo and my adult child 
independantly in hers with an aide next door or not. why not an 
entire condo building with autistic adults and their eldery families 
or not.  aides checkning in on both.  

i know i want to build a future. i will not just let things happen. i 
will be a deciding factor on how i want things to end up. you can as 
well.  of course things going get in the way but our future is 
something i am making a mindful decision of. i will be part of 
something many things inertwined together. each of us working on a 
differnet part. i will be part of something that will transform a 
supposed outcome. and for the challenges that come with peoples 
saying cant, and not able to, not enough monney, i remember that 
noone ever telling me i couldnt do anything ever really stuck. so i 
disregard naysayers. and i recommend the same for all. we can all do 
this be it in florida or alaska or everywheres inbetween and 
outwards..it starts with us all.. find someone going through the 
same. connect and network. babysit for one another. cook extra dinner 
for themselves one night whilst they cook dinner for you on another. 
today i stopped by and did my friends laundry and watched my friends 
kids whilst she worked today. my sister had first 4 and a half hours 
and i came by for the other four and a half hours. my friend came 
home to a clean house and i went home with a case diapers and 
babywipes. her kids are my kids. my kids are hers. build the village 
and people will come. and your worries are everyones worries that we 
take care of together.. it is possible. and people are doing it. we 
dont have to become statistics. we dont. if the future looks scary 
and grim we all have the pwoer to change it. believe it. abcd...




--- In autismlist@xxxxxxxxxxxxxxx, "Tink" <tink.lecuyer@xxxx> wrote:
>
> I was sorry to have missed this show.  If I can get the 
transcripts, will
> publish here.
> 
> 'Nightline' Looks at Adult Autism
> What Happens to Autistic Children When They Grow Up?
> 
> Oct. 7, 2005 ? More than one million Americans are autistic. It's 
the
> fastest growing developmental disability, estimated at one in 166 
births a
> year. Much has been reported on autistic youth and as we come to 
terms with
> this trend among children, many wonder: What happens when all these 
children
> grow up?
> 
> As ABC News correspondent John Donvan reports, a significant 
challenge
> facing these families is establishing enduring support for their 
children to
> last through adulthood and life. Jim and Jen Hoppe ? whose 21-year-
old
> daughter Jamie is profoundly autistic ? helped develop a school 
where Jamie
> made enormous progress for 16 years.
> 
> For the parents of Paul DiSavino, who is 36 and autistic, the 
concern now is
> what will happen to their son when they are gone. Their current 
solution is
> a group home, but the alternative would be unbearable. Says Paul's 
mother,
> Marlene, "He will not survive it ? it would be regressing back to 
the
> institutions, back to not caring, just doing, just warehousing them 
? not
> recognizing what's important, and just abandoning them."
> 
> Watch "Nightline" tonight at 11:35 p.m. ET to see the full report.
>






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