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Re: Another very fine tribute to Patricia Clark: msg#00077
culture.autism
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Subject: |
Re: Another very fine tribute to Patricia Clark |
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The tribute is evolving, thanks to everyone who
visits and leaves a comment. It's been really nice to watch it blossom. Please
join in!
----- Original Message -----
Sent: Thursday, July 21, 2005 4:33 PM
Subject: Re: [Autismlist] Another very fine tribute to Patricia
Clark
Tink and list,
Thank you
Tink for this collection of quotes from Patty Clark. I'm
forwarding
this to the Psych-DD list where she did a great deal
of
work.
Tom
--- Tink <tink_lecuyer@xxxxxxxxxxx>
wrote:
[from Sunday ~ 7-17-05]
http://neurodiversity.com/weblog/article/6/farewell-friend--patricia-e-clark
-1944-2005
Patricia
E. Clark died this morning of complications from a stroke.
She was
Recording Secretary for the Autism Society of America-Georgia
Chapter, and a
contributor to the book, Women from Another Planet, an
anthology of writings
by women on the autistic spectrum.
A memorial page for Patty is now
evolving at
http://home.mindspring.com/~jradin/patty/home.html.
I
will miss her, and I will miss her insights. Here are some of those
insights,
culled from newsgroup posts she made over the past few
months:
On
autistic children's potential and how we affect it:
"I think it's important
to have children with 'differences' hear
themselves
referred to in
'normal' ways and not always in the third person. Once
you
start stepping
out of this 'all kids learn as they grow up' scenario
verbally, the child is
learning that he IS a handicap or that he can't
expect a normal
life."
On empathy and realism:
"People deserve to have their feelings
validated. Saying 'I am
exhausted and
I feel like no one cares about me'
calls for emotional support and also
helpful suggestions for tomorrow. No one
can work themselves to
exhaustion
and confusion every single day and
always stay chipper and upbeat and
perky
about their situation!!! Our best
hope is to return to that state in
the
morning."
On vaccines and
autism:
"I get a tetanus booster every 10 years, and I have NOT noticed
that
they or
flu shots make me 'more autistic.' I notice that I don't get
tetanus or
flu,
however."
On the apparent increase in numbers of
autistics:
"The increase is in educational services. It has no relationship
to the
quantity of autistics 'left over' from before the educational law
went
into
effect.
"Before that date we were simply not educated
because we were
considered
'not worth the trouble and
expense.'
"Odd how clearly I remember those years, ducking the teachers
who
sensed my
discrepancies and tried to get me out of the educational
system. Odd
how so
few of us managed to get enough education and
orientation to society
without
the law behind that no one but me is here
to tell the truth.
"HERE I AM!!!!!"
On "beliefs" about
autism:
"I believe that as soon as belief becomes a factor in the
diagnosis,
care
of, relation to, etc., of a condition or disease, reason
goes out the
window
and we are all the primordial proto-people hiding in a
cave from the
darkness.
On diagnosis in adulthood:
"It's hugely
useful. If nothing else, it justifies their lifelong
struggle
to measure
up to what everyone demanded/expected of them and they
didn't/
couldn't/
wouldn't produce. It's such a relief to know you are not a
bad
person for
being yourself."
On growing older:
"When a woman reaches a certain
age, even if she is autistic, it
becomes red
hat and purple dress time and
one forgets to mind every last one of
one's P'
s and Q's and be totally
polite and vapid and ineffectual. I shall be
Eccentric and noisy."
On
the world as it is today:
"What is going on is that modern life is too
stressful.
"It isn't your kids that are the problem. It's the way we
require
people to
be islands of strength and don't support them as either
children or
adults.
"It's having to be perfect as an employee (able to
be the CEO of your
company even if you only want to do a clerk's
job).
"We need a drastic overhaul of our civilization's outlook
and
priorities."
"The essence of total denial operating in society
(is) to prevent
taking
care of business as it needs taking care
of."
On interventions and maturation
(This was Patty's last
substantial post to the St. Johns list.)
"What people don't 'get' about
autism, and that allows 'curebies' to
profit
immensely from the panic of
parents, is that WE DEVELOP.
"We don't keep regressing. We start working
around our deficits and
making
progress in our own unique
ways.
"It's 'normal' for a diagnosed autistic child to begin to
progress
whether
or not he/she receives costly
interventions.
"Apparently some kids with autism are not able to connect
this way and
progress on their own. ome need more help. And from what I read,
there
are
some or many who do not seem to progress at all, or else the
difficulty
is
so great/ frustration/overload is so appalling, that they
just get all
defensive and cannot deal with the training.
"However,
most autistics progress with reasonable teaching efforts, and
most
speak
by the time they are nine years old. Most are not retarded-merely
unable to
deal with IQ tests the same way that neurotypical children
are
able to
deal with them.
"It's possible to push an autistic too hard and induce a
regression
through
panic, overload or whatever is stressing the
child/adult with autism.
However, it is NORMAL for us to gain skills and
abilities as we age.
"By the way, I was diagnosed autistic in 1950. I am
still autistic.
Nothing
changed in the interventing 50-plus years except
that I have learned to
work
better with my disabilities.
"Final
word: ideally, a diagnosis is a neurological assessment, not
just
a
compendium of 'behaviors.' In that case, it will serve you well
in
mapping
'where to go from here.' If it's only behaviorally-based, it's
not much
help
and means little."
Thank you,
Patty.
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