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Subject: RE: Fw: [FCworld] Positive newspaper article about FC - msg#00035List: culture.autismThanks, Art! I went ahead and posted the article below, because it's really good and I felt it would be important to have it archived here, rather than just the link. Sometimes these things "disappear" from the archives of newspapers and such. Anyway, if anyone is interested in seeing Mark Reeves at work in his home office, there is a picture at the link site too. Out of silence, flood of ideas emerges ---------------------------------------------------------------------------- ---- By Debra Brubaker For The Daily Item ---------------------------------------------------------------------------- ---- A prisoner of his own silence. That?s how Mark Reeves of Watsontown felt before being introduced to Facilitated Communication. For 21 years, while being schooled through the Trainable Mentally Retarded classes at Mifflinburg High School, Reeves was unable to effectively communicate. "I was a sponge and absorbed the world around me," reveals the 36-year-old Reeves. "Because I couldn?t speak or ask questions, I took everything in and filed it in my brain for future use. I believed some day I would be able to communicate." Thanks to former teacher and friend Mary Lapos who introduced Reeves to Facilitated Communication (FC) 10 years ago, he is now on a mission to open people?s minds so others have the opportunity to speak using FC (speech-impaired individuals are assisted in spelling words by facilitators who provide physical support, most often by supporting their wrist or forearm while they strike letters on a keyboard or printed letter display). "I have 3,000 goals," said Reeves. "The most important is to make people believe I am not retarded." Over the years, Chris Minnich, Northumberland County?s Mental Health program coordinator, has watched how FC allowed Reeves to convey his thoughts. "One of the first wishes he strongly expressed was that he no longer wanted to wear brown," laughed Reeves? mom, Ann, who tended to buy Mark neutral-colored clothes. "I could finally tell people about me; tell my mom I hate brown," typed Reeves. "FC is a blessing that allows those with special abilities to share their thoughts and feelings in a way that is understandable to the rest of the world," said Minnich. "The general population needs to be open-minded about Augmentative and Alternative Communication (AAC) ? not everyone is expected to understand its techniques, just appreciate its opportunities and benefits." FC has opened many doors for Reeves ? including the door to his own home, which he calls "The Happening Place." Growing up on an isolated farm didn?t leave a lot of things for Reeves to do. Now living in his home in downtown Watsontown, there are lots of things to do. "It?s a happening place," he said. The move to "The Happening Place," was not an easy one but something Reeves was committed to doing. "A proposal was written to the county asking for their support," said Ann Reeves. "Then a request for technical assistance was written to and accepted by the Pennsylvania Self Determination Housing Project." After all those years without a way to communicate, Reeves, with the help of FC, a Link communication device, and a training assistant, now feels like a real person. "People don?t treat me as retarded if I can communicate with them," typed Reeves. "Unfortunately most people judge us on how we look and act and don?t give us a chance to prove our worth." Reeves? assistant for the past year, Thomas F. Gray, believes Reeves does not have the opportunity to share his opinions as freely as the rest of us. "Due to the challenge of using FC as your only means of communication, Mark must choose carefully what is important enough to share with us. "Mark is truly one of the most intriguing people I have met," added the 24-year-old Gray. "He has compassion for others that is akin to empathy and is more likely to forgive others for their slights against him than others I know." As a Facilitated Communication Consultant and Associate with Networks for Training and Development, of Philadelphia, Reeves continues his advocacy for people with speech impairments by giving presentations across Pennsylvania and the United States and coordinating the Northumberland County Snack and Chat for AAC and FC users. Reeves is a former president of Lonesome Doves, "a group of people who have been coming together once a month since 1997 to support each other and advocate for their right to communicate in their chosen modality. They wish to be recognized as competent and responsible people." Updated information about Lonesome Doves will soon be available at www.lonesomedoves.org. "Lonesome Doves is an issue-oriented advocacy group," adds Gray. "They strive to accomplish difficult goals: challenges they face are often difficult ? it can be hard to change the minds of people." Reeves urges parents of children with speech impairments to give them the opportunity to try all methods of AAC and support the one that works. "Don?t give up hope and keep trying anything that is offered," he said. And for those with speech impairments, "Believe in yourself and some one will eventually believe in you." http://www.dailyitem.com/archive/2004/1208/fea/stories/04fea.htm Where Have All The Flowers Gone P. Seger When will they learn, ever learn When will they learn When will they learn, ever learn When will they ever learn When will they ever learn If you don't know what we're talkin' about when we say this There's too many starvin' children If ya don't know what we're killing each other And We just ain't got time for ya brother No no hey hey ... ~*~ Tink > -----Original Message----- > From: Arthur Golden [mailto:golden@xxxxxxxxx] > Sent: Sunday, January 09, 2005 4:30 AM > To: autismlist@xxxxxxxxxxxxxxx > Subject: [Autismlist] Fw: [FCworld] Positive newspaper article about FC > > > > > Last night I found a positive newspaper article about Facilitated > Communication (FC) from just one month ago. It is about Mark Reeves > of the Lonesome Doves and the link is: > > http://www.dailyitem.com/archive/2004/1208/fea/stories/04fea.htm > > I just joined FCworld, thanks to the notice from Sheree Burke posted > on the yahoo!group autismlist. I have not had a chance to read too > many of the prior posts and doubt that I will be able to do so. I > see that about one-third of the former members of the FCNet seem to > have joined this [FCworld] yahoo!group. Also, my appreciation to Pat > Edwards for her many years of effort with FCNet and for starting > FCworld. > > I did not receive any notice directly from Pat Edwards so I wonder > how the other old members of the FCNet are being notified about the > start of FCworld? As an old hand with yahoo!groups, I do wish to > mention that it is possible to sign up people and they can decide to > unsubscribe if they wish. > > Arthur Golden of Jerusalem Israel > golden@xxxxxxxxx > http://groups.yahoo.com/group/AutismAG/ > > > > > > > > > Yahoo! Groups Links > > > > > > > ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/wzSolB/TM --------------------------------------------------------------------~->
Thread at a glance:
Previous Message by Date: (click to view message preview)people/GarethGareth: Sorry to respond on the list, but my messege reply to you came back as undeliverable. So......just wanted to say to you. that's so true....the bad ones DO hide among the good ones........Jamie has talked about a shift coming, and that it's beginning. Hopefully that means the numbers of the bad will be diminishing. Hope all is going well........there will be an FC Training course offered in London in March and April, if you have any interest. I can send along the link as we just heard from some of the people we worked with at the Bolton Institute in Manchester. Warm regards, Sheree Yahoo! Groups Links To visit your group on the web, go to:http://groups.yahoo.com/group/autismlist/ To unsubscribe from this group, send an email to:autismlist-unsubscribe@xxxxxxxxxxxxxxx Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. Next Message by Date: click to view message previewInteresting linkhttp://www.quackwatch.org/01QuackeryRelatedTopics/autism.html -Janna -- Early Birds Program Assistant (special needs 1:1 preschool) Autism Support Worker (independent contractor) ABA/IBI Therapist (independent contractor) Calgary, AB, Canada BMus, BAPsych **************************************************************************** "Home is not a place. It is wherever your passion takes you." - President John Sheridan, Babylon 5 (Objects At Rest, Production #522) "If you don't like the way the world is, you change it. You have an obligation to change it. You just do it one step at a time. You really can change the world if you care enough." - Mary Wright Edelman "Deep calls to deep in the roar of Your waterfall; all of your waves and breakers have swept over me." - Psalm 42:7 "Rolling river God, little stones are smooth, only once the water passes through..." - Nichole Nordeman, "river god" (wide eyed, 1998) "Nobody else is stronger than I am, today I moved a mountain! I'd like to be your hero, I am a mighty little man!" - Steve Burns, "Mighty Little Man" (Songs For Dustmites, 2003) http://members.shaw.ca/treatautism **************************************************************************** ------------------------ Yahoo! Groups Sponsor --------------------~--> Help save the life of a child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/0iazvD/5WnJAA/xGEGAA/wzSolB/TM --------------------------------------------------------------------~-> Previous Message by Thread: click to view message previewRe: Fw: [FCworld] Positive newspaper article about FCHi Art! Pat took all the old addresses she had from the list when it originated.......gee, that must have been at least 8 years ago, right?? Nice to hear positive things about FC...thanks once again for providing a link. Jamie will be going to the FC Congress in Germany in April to do a presentation with Marilyn Chadwick, Annegret Schubert, and Doug Biklen. It sounds like Germany has taken a step backwards in their support. It seems to center around the issue of achieving independence. I understand this is their 9th FC Congress, so it would appear they have quite a number of folks using FC. Have you ever attended there? Warm regards to you and Ben, ~Sheree ----- Original Message ----- From: "Arthur Golden" <golden@xxxxxxxxx> To: <autismlist@xxxxxxxxxxxxxxx> Sent: Sunday, January 09, 2005 4:30 AM Subject: [Autismlist] Fw: [FCworld] Positive newspaper article about FC > > > Last night I found a positive newspaper article about Facilitated > Communication (FC) from just one month ago. It is about Mark Reeves > of the Lonesome Doves and the link is: > > http://www.dailyitem.com/archive/2004/1208/fea/stories/04fea.htm > > I just joined FCworld, thanks to the notice from Sheree Burke posted > on the yahoo!group autismlist. I have not had a chance to read too > many of the prior posts and doubt that I will be able to do so. I > see that about one-third of the former members of the FCNet seem to > have joined this [FCworld] yahoo!group. Also, my appreciation to Pat > Edwards for her many years of effort with FCNet and for starting > FCworld. > > I did not receive any notice directly from Pat Edwards so I wonder > how the other old members of the FCNet are being notified about the > start of FCworld? As an old hand with yahoo!groups, I do wish to > mention that it is possible to sign up people and they can decide to > unsubscribe if they wish. > > Arthur Golden of Jerusalem Israel > golden@xxxxxxxxx > http://groups.yahoo.com/group/AutismAG/ > > > > > > > > > Yahoo! Groups Links > > > > > > > ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/wzSolB/TM --------------------------------------------------------------------~-> Next Message by Thread: click to view message previewRE: Fw: [FCworld] Positive newspaper article about FCGreat article. Mark Reeves sums it up perfectly. I like this paragraph particularly: > "FC is a blessing that allows those with special abilities to share > their > thoughts and feelings in a way that is understandable to the rest of > the > world," said Minnich. "The general population needs to be open-minded > about > Augmentative and Alternative Communication (AAC) ? not everyone is > expected > to understand its techniques, just appreciate its opportunities and > benefits." "People with special abilities". Why didn't I think of that? I'm going through the posts of the past few weeks and will catch up in a day or two. Tom --- Tink <tink_lecuyer@xxxxxxxxxxx> wrote: > Thanks, Art! > I went ahead and posted the article below, because it's really good > and I > felt it would be important to have it archived here, rather than just > the > link. Sometimes these things "disappear" from the archives of > newspapers > and such. Anyway, if anyone is interested in seeing Mark Reeves at > work in > his home office, there is a picture at the link site too. > > > Out of silence, flood > of ideas emerges > > ---------------------------------------------------------------------------- > ---- > By Debra Brubaker > For The Daily Item > ---------------------------------------------------------------------------- > ---- > A prisoner of his own silence. That?s how Mark Reeves of Watsontown > felt > before being introduced to Facilitated Communication. For 21 years, > while > being schooled through the Trainable Mentally Retarded classes at > Mifflinburg High School, Reeves was unable to effectively > communicate. > "I was a sponge and absorbed the world around me," reveals the > 36-year-old > Reeves. "Because I couldn?t speak or ask questions, I took everything > in and > filed it in my brain for future use. I believed some day I would be > able to > communicate." > > Thanks to former teacher and friend Mary Lapos who introduced Reeves > to > Facilitated Communication (FC) 10 years ago, he is now on a mission > to open > people?s minds so others have the opportunity to speak using FC > (speech-impaired individuals are assisted in spelling words by > facilitators > who provide physical support, most often by supporting their wrist or > forearm while they strike letters on a keyboard or printed letter > display). > > "I have 3,000 goals," said Reeves. "The most important is to make > people > believe I am not retarded." > > Over the years, Chris Minnich, Northumberland County?s Mental Health > program > coordinator, has watched how FC allowed Reeves to convey his > thoughts. > > "One of the first wishes he strongly expressed was that he no longer > wanted > to wear brown," laughed Reeves? mom, Ann, who tended to buy Mark > neutral-colored clothes. > > "I could finally tell people about me; tell my mom I hate brown," > typed > Reeves. > > "FC is a blessing that allows those with special abilities to share > their > thoughts and feelings in a way that is understandable to the rest of > the > world," said Minnich. "The general population needs to be open-minded > about > Augmentative and Alternative Communication (AAC) ? not everyone is > expected > to understand its techniques, just appreciate its opportunities and > benefits." > > FC has opened many doors for Reeves ? including the door to his own > home, > which he calls "The Happening Place." Growing up on an isolated farm > didn?t > leave a lot of things for Reeves to do. > > Now living in his home in downtown Watsontown, there are lots of > things to > do. "It?s a happening place," he said. > > The move to "The Happening Place," was not an easy one but something > Reeves > was committed to doing. "A proposal was written to the county asking > for > their support," said Ann Reeves. "Then a request for technical > assistance > was written to and accepted by the Pennsylvania Self Determination > Housing > Project." > > After all those years without a way to communicate, Reeves, with the > help of > FC, a Link communication device, and a training assistant, now feels > like a > real person. "People don?t treat me as retarded if I can communicate > with > them," typed Reeves. "Unfortunately most people judge us on how we > look and > act and don?t give us a chance to prove our worth." > > Reeves? assistant for the past year, Thomas F. Gray, believes Reeves > does > not have the opportunity to share his opinions as freely as the rest > of us. > > "Due to the challenge of using FC as your only means of > communication, Mark > must choose carefully what is important enough to share with us. > > "Mark is truly one of the most intriguing people I have met," added > the > 24-year-old Gray. "He has compassion for others that is akin to > empathy and > is more likely to forgive others for their slights against him than > others I > know." > > As a Facilitated Communication Consultant and Associate with Networks > for > Training and Development, of Philadelphia, Reeves continues his > advocacy for > people with speech impairments by giving presentations across > Pennsylvania > and the United States and coordinating the Northumberland County > Snack and > Chat for AAC and FC users. > > Reeves is a former president of Lonesome Doves, "a group of people > who have > been coming together once a month since 1997 to support each other > and > advocate for their right to communicate in their chosen modality. > They wish > to be recognized as competent and responsible people." Updated > information > about Lonesome Doves will soon be available at www.lonesomedoves.org. > > "Lonesome Doves is an issue-oriented advocacy group," adds Gray. > "They > strive to accomplish difficult goals: challenges they face are often > difficult ? it can be hard to change the minds of people." > > Reeves urges parents of children with speech impairments to give them > the > opportunity to try all methods of AAC and support the one that works. > "Don?t > give up hope and keep trying anything that is offered," he said. And > for > those with speech impairments, "Believe in yourself and some one will > eventually believe in you." > > http://www.dailyitem.com/archive/2004/1208/fea/stories/04fea.htm > > Where Have All The Flowers Gone > P. Seger > > When will they learn, ever learn > When will they learn > When will they learn, ever learn > When will they ever learn > When will they ever learn > > If you don't know what we're talkin' about > when we say this > There's too many starvin' children > If ya don't know what we're killing each other > And We just ain't got time for ya brother > No no hey hey ... > > ~*~ Tink > > > > > > > -----Original Message----- > > From: Arthur Golden [mailto:golden@xxxxxxxxx] > > Sent: Sunday, January 09, 2005 4:30 AM > > To: autismlist@xxxxxxxxxxxxxxx > > Subject: [Autismlist] Fw: [FCworld] Positive newspaper article > about FC > > > > > > > > > > Last night I found a positive newspaper article about Facilitated > > Communication (FC) from just one month ago. It is about Mark > Reeves > > of the Lonesome Doves and the link is: > > > > http://www.dailyitem.com/archive/2004/1208/fea/stories/04fea.htm > > > > I just joined FCworld, thanks to the notice from Sheree Burke > posted > > on the yahoo!group autismlist. I have not had a chance to read too > > many of the prior posts and doubt that I will be able to do so. I > > see that about one-third of the former members of the FCNet seem to > > have joined this [FCworld] yahoo!group. Also, my appreciation to > Pat > > Edwards for her many years of effort with FCNet and for starting > > FCworld. > > > > I did not receive any notice directly from Pat Edwards so I wonder > > how the other old members of the FCNet are being notified about the > > start of FCworld? As an old hand with yahoo!groups, I do wish to > > mention that it is possible to sign up people and they can decide > to > > unsubscribe if they wish. > > > > Arthur Golden of Jerusalem Israel > > golden@xxxxxxxxx > > http://groups.yahoo.com/group/AutismAG/ > > > > > > > > > > > > > > > > > > Yahoo! Groups Links > > > > > > > > > > > > > > > > __________________________________ Do you Yahoo!? Yahoo! Mail - Easier than ever with enhanced search. Learn more. http://info.mail.yahoo.com/mail_250 ------------------------ Yahoo! Groups Sponsor --------------------~--> Help save the life of a child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/0iazvD/5WnJAA/xGEGAA/wzSolB/TM --------------------------------------------------------------------~->
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